Fantastic to hear you are getting clarity Julie - and a reminder that even the 'experts' (eg Mayo in your case, heart specialists in mine) don't have all the answers. It has taken me more than 30 years of doctor's visits, emergency room visits, wearing heart monitors, doing stress tests and angiograms to become aware that my heart beats in an irregular, violent fashion after I have excessive amounts of high salycilate foods over a 24 hour period. Starting with my much loved glass of white wine of an evening going right through to eating mints or having berries on my breakfast cereal. Also causes the skin on my hands to peel (when in personal grooming products such as certain liquid soaps) I had to work it all out for myself - it was an answer to prayer for sure. Keep searching Julie - sounds like you are on the road to resolution xx
Thank you, Fiona, for such a heartfelt response! (Ok, pun intended 🤣)
Being our own healthcare advocate, for what at first seems like random incidents, is a difficult role. But bravo to both of us for sticking with it to get answers and clarity.
30 years is a long time, Fiona… Super big kudos and a great big hug to you. It’s been a pleasure to meet you on this writing journey, which parallels life.
Fantastic to hear you are getting clarity Julie - and a reminder that even the 'experts' (eg Mayo in your case, heart specialists in mine) don't have all the answers. It has taken me more than 30 years of doctor's visits, emergency room visits, wearing heart monitors, doing stress tests and angiograms to become aware that my heart beats in an irregular, violent fashion after I have excessive amounts of high salycilate foods over a 24 hour period. Starting with my much loved glass of white wine of an evening going right through to eating mints or having berries on my breakfast cereal. Also causes the skin on my hands to peel (when in personal grooming products such as certain liquid soaps) I had to work it all out for myself - it was an answer to prayer for sure. Keep searching Julie - sounds like you are on the road to resolution xx
Thank you, Fiona, for such a heartfelt response! (Ok, pun intended 🤣)
Being our own healthcare advocate, for what at first seems like random incidents, is a difficult role. But bravo to both of us for sticking with it to get answers and clarity.
30 years is a long time, Fiona… Super big kudos and a great big hug to you. It’s been a pleasure to meet you on this writing journey, which parallels life.
Keep on keeping on…. And thank you for your support of Living an Unlimited Life (www.livinganunlimitedlife.com).
You’re amazing, Julie.
Thank you, Carrie! It’s been a long, challenging road — such a relief to finally have some progress!